My Baby Has Gastroschisis
Medically reviewed by Dr. Michael Okonkwo, MD, FAAP · Board-Certified Neonatologist
Content reviewed against published CDC, NIH, Children's Hospital guidelines
Last reviewed:
If your baby has been diagnosed with or you suspect has gastroschisis, here is what the evidence says.
The short answer
Gastroschisis is a birth defect where the baby's intestines (and sometimes other organs) extend outside the body through a hole in the abdominal wall, usually to the right of the umbilical cord. Unlike omphalocele, there is no protective membrane covering the organs. It is typically detected on prenatal ultrasound around 18-20 weeks. Surgical repair is performed within hours of birth, and the majority of babies do very well after treatment.
Key takeaways
- Gastroschisis is a birth defect where the baby's intestines (and sometimes other organs) extend outside the body through a hole in the abdominal wall, usually to the right of the umbilical cord. Unlike omphalocele, there is no protective membrane covering the organs. It is typically detected on prenatal ultrasound around 18-20 weeks. Surgical repair is performed within hours of birth, and the majority of babies do very well after treatment.
- Usually normal when: Gastroschisis was detected on prenatal ultrasound and you are being followed by a maternal-fetal medicine specialist and pediatric surgeon
- Call your doctor if: Your baby has bilious (green) vomiting, which could indicate a bowel obstruction
- Varies by age — see the age-by-age breakdown below
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What Parents Should Know
According to CDC, NIH, Children's Hospital guidelines, gastroschisis is a birth defect where the baby's intestines (and sometimes other organs) extend outside the body through a hole in the abdominal wall, usually to the right of the umbilical cord. Unlike omphalocele, there is no protective membrane covering the organs. It is typically detected on prenatal ultrasound around 18-20 weeks. Surgical repair is performed within hours of birth, and the majority of babies do very well after treatment. At Prenatal, gastroschisis is usually diagnosed on a routine anatomy scan ultrasound at 18-20 weeks. You will be referred to a maternal-fetal medicine specialist and a pediatric surgeon for counseling. Delivery is planned at a center with a neonatal intensive care unit and pediatric surgery. Serial ultrasounds monitor bowel dilation and growth. Vaginal delivery is often possible. The incidence has been rising, particularly among younger mothers, though the exact cause remains unknown. It is generally considered normal when gastroschisis was detected on prenatal ultrasound and you are being followed by a maternal-fetal medicine specialist and pediatric surgeon. However, you should contact your pediatrician promptly if your baby has bilious (green) vomiting, which could indicate a bowel obstruction.
Normal vs. Concerning
When to Seek Immediate Care
- Your baby has bilious (green) vomiting, which could indicate a bowel obstruction
- Your baby has a distended, firm, or tender abdomen with irritability
- Your baby stops stooling and develops vomiting, which may indicate an adhesive obstruction
- Your baby has signs of infection at the surgical site: redness, swelling, drainage, or fever
- Your baby develops feeding intolerance with significant vomiting after previously feeding well
By Age
What to expect by age
Prenatal
Gastroschisis is usually diagnosed on a routine anatomy scan ultrasound at 18-20 weeks. You will be referred to a maternal-fetal medicine specialist and a pediatric surgeon for counseling. Delivery is planned at a center with a neonatal intensive care unit and pediatric surgery. Serial ultrasounds monitor bowel dilation and growth. Vaginal delivery is often possible. The incidence has been rising, particularly among younger mothers, though the exact cause remains unknown.
0-1 week
Immediately after birth, the exposed intestines are covered with a sterile, moist dressing to prevent heat and fluid loss. If all the bowel fits back in the abdomen, primary closure surgery is performed within hours. If the abdominal cavity is too small, a silo (a temporary pouch) is placed over the intestines, and the bowel is gradually reduced back into the abdomen over several days before final closure. Your baby will be in the NICU during this time.
1-4 weeks
After surgical closure, the bowel needs time to "wake up" and begin functioning. This period of intestinal dysmotility is common. Your baby will be fed intravenously (TPN) until the intestines start working. Feedings are introduced very slowly, starting with small amounts of breast milk or formula. Some babies take days, others take weeks, to tolerate full feeds. Patience is key during this phase.
1-6 months
Most babies with simple gastroschisis are feeding well and growing by this point. Some babies with complex gastroschisis (where the bowel was damaged, twisted, or had areas of atresia) may take longer to achieve full feeds. Rarely, short bowel syndrome can result if significant bowel was lost. Follow-up with your pediatric surgeon and pediatrician will monitor feeding, growth, and any complications.
6 months+
Long-term outcomes for gastroschisis are excellent for the majority of children. Most achieve normal growth, development, and bowel function. The surgical scar fades over time. Some children may have an increased risk of adhesive bowel obstruction later in life. Regular pediatric follow-up is important, but most children lead completely normal lives with no lasting effects.
What to Tell Your Pediatrician
- Describe when you first noticed has gastroschisis and how it has changed over time.
- Note your baby's current age and which age-specific patterns you are seeing.
- Mention if your baby seems to have feeding difficulties or is not gaining weight as expected after discharge.
- Mention if you notice abdominal distension or your baby seems uncomfortable after feeding.
- Let your doctor know if you have noticed any related concerns, such as changes in feeding, sleep, or movement patterns.
- Bring a list of any questions or observations you want to discuss at the appointment.
What Should You Do?
When to take action
- Gastroschisis was detected on prenatal ultrasound and you are being followed by a maternal-fetal medicine specialist and pediatric surgeon
- Your baby had successful surgical repair and is gradually tolerating feeds in the NICU
- Your baby is gaining weight and feeding well after discharge
- Your baby is meeting developmental milestones at expected ages
- The surgical scar is healing normally
- Your baby seems to have feeding difficulties or is not gaining weight as expected after discharge
- You notice abdominal distension or your baby seems uncomfortable after feeding
- You have questions about follow-up care or future surgical risks
- You are concerned about the appearance of the surgical scar
- Your baby has bilious (green) vomiting, which could indicate a bowel obstruction
- Your baby has a distended, firm, or tender abdomen with irritability
- Your baby stops stooling and develops vomiting, which may indicate an adhesive obstruction
- Your baby has signs of infection at the surgical site: redness, swelling, drainage, or fever
- Your baby develops feeding intolerance with significant vomiting after previously feeding well
What You Can Do at Home
- Keep track of when you notice has gastroschisis — noting the time of day, duration, and any triggers can help your pediatrician.
- Remember that gastroschisis was detected on prenatal ultrasound and you are being followed by a maternal-fetal medicine specialist and pediatric surgeon — this is generally within the range of normal.
- At Prenatal, focus on observation rather than intervention unless your pediatrician advises otherwise.
- Follow any care instructions from your pediatrician. Keep a written log of symptoms to bring to appointments.
- While monitoring at home, seek immediate care if your baby has bilious (green) vomiting, which could indicate a bowel obstruction.
Related Conditions
My Baby Has an Omphalocele
An omphalocele is a birth defect where abdominal organs (intestines, liver, or other organs) protrude into the base of the umbilical cord, covered by a thin membrane. It differs from gastroschisis in that the organs are covered by a protective sac and the defect is located at the umbilicus. Omphalocele is associated with chromosomal abnormalities and cardiac defects in up to 50% of cases, so thorough genetic testing and cardiac evaluation are recommended. Small omphaloceles are repaired surgically soon after birth, while giant omphaloceles may require staged repair.
20-Week Anatomy Scan Unexpected Findings
The 20-week anatomy scan checks your baby's major organs, structures, and growth. Most scans are completely normal. When unexpected findings are identified, they range from minor variants that resolve on their own to conditions that need further evaluation. Many findings require nothing more than a follow-up ultrasound to confirm the baby is developing well.
Related Resources
Frequently asked questions
Is has gastroschisis normal?
When should I call the doctor about has gastroschisis?
When is has gastroschisis normal?
What causes has gastroschisis?
What should I mention to my pediatrician about has gastroschisis?
Is has gastroschisis normal at Prenatal?
Is has gastroschisis normal at 0-1 week?
Should I go to the ER for has gastroschisis?
Does has gastroschisis go away on its own?
References
- [1]Centers for Disease Control and Prevention. Facts about Gastroschisis. Birth Defects, 2024. CDC
- [2]National Institutes of Health. Gastroschisis. Genetic and Rare Diseases Information Center (GARD), 2024. NIH
- [3]Boston Children's Hospital. Gastroschisis: Symptoms, Diagnosis, and Treatment. Children's Hospital
Doctor Visit Checklist
Bring this checklist to your next pediatrician visit to discuss My Baby Has Gastroschisis.
Things to mention
- Describe when you first noticed has gastroschisis and how it has changed over time.
- Note your baby's current age and which age-specific patterns you are seeing.
- Mention if your baby seems to have feeding difficulties or is not gaining weight as expected after discharge.
- Mention if you notice abdominal distension or your baby seems uncomfortable after feeding.
- Let your doctor know if you have noticed any related concerns, such as changes in feeding, sleep, or movement patterns.
- Bring a list of any questions or observations you want to discuss at the appointment.
Observations to share
- Your baby seems to have feeding difficulties or is not gaining weight as expected after discharge
- You notice abdominal distension or your baby seems uncomfortable after feeding
- You have questions about follow-up care or future surgical risks
Urgent signs to report immediately
- Your baby has bilious (green) vomiting, which could indicate a bowel obstruction
- Your baby has a distended, firm, or tender abdomen with irritability
- Your baby stops stooling and develops vomiting, which may indicate an adhesive obstruction
My notes
From ismybabyalright.com — free, evidence-based baby health guides
All content follows our editorial policy and is reviewed against published clinical guidelines.
2,705 evidence-based guides6 authoritative medical sources5 medical advisory board members
Related Resources
Bottom line
Most cases of has gastroschisis are normal. Talk to your pediatrician if your baby has bilious (green) vomiting, which could indicate a bowel obstruction.
Trust your instincts. If something feels wrong, reach out to your pediatrician. Worrying about your baby means you care — that is a good thing.
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Related Medical Concerns
My Baby Has an Omphalocele
An omphalocele is a birth defect where abdominal organs (intestines, liver, or other organs) protrude into the base of the umbilical cord, covered by a thin membrane. It differs from gastroschisis in that the organs are covered by a protective sac and the defect is located at the umbilicus. Omphalocele is associated with chromosomal abnormalities and cardiac defects in up to 50% of cases, so thorough genetic testing and cardiac evaluation are recommended. Small omphaloceles are repaired surgically soon after birth, while giant omphaloceles may require staged repair.
20-Week Anatomy Scan Unexpected Findings
The 20-week anatomy scan checks your baby's major organs, structures, and growth. Most scans are completely normal. When unexpected findings are identified, they range from minor variants that resolve on their own to conditions that need further evaluation. Many findings require nothing more than a follow-up ultrasound to confirm the baby is developing well.
My Baby's Head Shape Looks Abnormal
Many babies develop temporary head shape irregularities that are completely normal. A cone-shaped head from vaginal delivery reshapes within days. Mild positional flattening (plagiocephaly) from sleeping on the back is very common and usually improves with repositioning and tummy time. However, head shape changes involving ridges, a persistently bulging fontanelle, or rapid head growth changes should be evaluated to rule out craniosynostosis.
Achondroplasia (Dwarfism) in Babies
Achondroplasia is the most common form of short-limbed dwarfism, affecting about 1 in 15,000 to 40,000 births. It is caused by a mutation in the FGFR3 gene and is usually apparent at birth with characteristic features including short limbs, a larger head, and a prominent forehead. Intelligence is normal. With monitoring for specific complications and supportive care, children with achondroplasia lead full, active, and independent lives.
Adenoid Hypertrophy and Breathing
Adenoids are lymphoid tissue located behind the nose that help fight infection in young children. When adenoids become enlarged (adenoid hypertrophy), they can block the nasal airway, causing chronic mouth breathing, snoring, nasal speech, and sleep-disordered breathing. Enlarged adenoids are most common between ages 2-7 and are a leading cause of obstructive sleep apnea in young children. Treatment ranges from watchful waiting and nasal steroids to surgical removal (adenoidectomy) if breathing or sleep is significantly affected.
Adrenoleukodystrophy (ALD) in Babies
X-linked adrenoleukodystrophy (X-ALD) is a genetic disorder affecting about 1 in 17,000 newborns, caused by mutations in the ABCD1 gene on the X chromosome. It primarily affects boys and impairs the breakdown of very long-chain fatty acids (VLCFAs), which accumulate and damage the myelin sheath in the brain and the adrenal glands. The most severe form, cerebral ALD, typically affects boys between ages 4-10 with rapid neurological decline. Newborn screening now enables early detection, and hematopoietic stem cell transplant or gene therapy performed before significant brain involvement can be life-saving.